83 hours and counting

January 11, 2010 at 12:29 pm (Uncategorized)

So it’s monday and I’m missing school this very minute. Oh how I love how I’m going to have to make up all this work at once.

Yesterday I made it a goal to walk past the door and hopefully out of this place… I made it out the door and out to the hallway of my unit, went out to the elevators and back. I’m making some progress. My mom is here pushing me to get up more often and go for a walk. It seems to be doing me some good. I no longer need someone to hold me up.

My goal today is get rid of my walker. I finally got my heart monitor off this morning so I’m just HOPING to get out of here today!

I really don’t know how people can stay in a hospital for so long.  It’s been sad around here because the woman next to me may never make it out of here. I’m the youngest one in my unit and I’m surrounded by people who have gone through strokes, seizures, and other neurological problems. They ruled out my seizures on Saturday morning, but all I’m doing is getting physical therapy. I’m not sure why I’m still in this unit.

Well I’m going to bug the nurses….be back later


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January 10, 2010 at 1:15 pm (Uncategorized)

Joke of the day…

Procrastination is the greatest laborsaving intention of all times.

I wish I had a view like this!!

I can’t believe it’s only Sunday…feels like I’ve been here a week though. My days are long and boring.

I don’t have much to update…my doctor just came in and said we’ll there isn’t much we can do for you. All we are waiting on is for you to walk to get out of here. It’s a slow process but it’s been getting better.  Yesterday I made it as far as the door (with my walker).

Today I’m hoping to make it as far as I can out of this place.

My mother is coming in so she’ll be able to keep me company all day. That’ll be nice.

Today I’m attempting to do homework again. Hoping it’ll be a little more successful than yesterday. I got 1 page done so far  of the 3 papers I have to do, and 1 chemistry problem done of 15 total. Now that I finally got the TV to work it’s become more of a distraction and I can’t get anything done. I’ve been watching the Law and Order SVU marathon and once one show starts, my eyes are glued to the TV since it’s so interesting. Then I tell myself ok I’m going to turn off the tv after this show… nope I get sucked into watching the next one and the next. Oh well… it’s not on right now so I guess I better get started with my work.

I got delivered breakfast at 7:00 am this morning and decided to completely ignore it. It’s not like I was looking forward to it anyways. Lunch is in 2 hours…blah.

Well I will update if anything changes….

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Meet my new best friend… my walker…

January 9, 2010 at 9:27 pm (Uncategorized)

Ok I’m officially bored…when I wished for a day to do absolutely nothing… I take that back…I want a day to do absolutely everything I can!

Here’s the update… neuro came in again for the 5th time to give me an exam I know by heart. No word about whether I’m getting further testing or not. I just started with physical therapy this afternoon to start walking again. I know what it feels like to be a 90 year old with a walker…not exactly the most thrilling ride of your life. Apparantely walking is what’s going to get me out of this hospital. Although, I already asked a couple of my visitors to grab a wheelchair and wheel me out of this place…hmm maybe tomorrow. As far as my dizziness, it’s still driving me crazy. I have medicine to supposedly help me, but it doesn’t seem to have much of an effect.

My dinner arrived at 4:40…even worse than I expected and it was meatloaf and gravy with green beans. Not that I don’t naturally like that stuff when it’s homemade, but it looked DISGUSTING! My nurse came in and asked if I ate anything…I told her I wasn’t hungry…she walked away and I immediately open up a bag of chips and cookies my visitors have brought me. LOL!

I finally got TV service…a little more entertaining than people watching.

I also got my homework… why does this weekend have to be crammed with papers? It’s a little hard to focus when you’re drugged up and dizzy. Oh well, I’m doing them anyways. Hopefully it won’t turn out so bad. It reminds me of the one time I had a stomach flu and I had a video presentation I was suppose to do over the weekend for my American sign language class. I remember that I took all this medicine and I literally forgot everything that happened after that. I did the video and I had proof of it later. My teacher decided to display some of the videos and chose to display mine after some really good ones. In my head I couldn’t recall if I did it in the first place. So I’m watching it and I’m half sitting in a chair and half not. I have my pajamas on backwards, my hair in a messy side pony tail and I’m signing a made up story that I hardly knew the signs for. It was mortifying to watch and of course my teacher gave me a C. I should have gotten an A for trying…lol.

Anyways I’m going to stop writing a novel since I could really go on all day. I have no one to talk to so this is better than talking to some wall…otherwise, neuro would really think I’d have some problems. Might cost me another day in the hospital to make sure I’m not “losing it”.

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January 9, 2010 at 1:35 pm (Uncategorized)

Alright people… I’m updating since I’ve got nothing better to do (literally) because I’m stuck in a hospital bed… I’ll explain why in a minute…

Here’s your joke for the day…

I got angry when my cell phone died. My counselor suggested I find an outlet.

HAHA I love that joke! Well now that I’m in a hospital environment I’ve been thinking about my future career. I decided that I wanted to become a genetic counselor back in August and I have been more motivated to do that job than any other career path I have previously chosen. However genetic counseling is not the typical kind of “counselor” you would see at a school. Basically genetic counseling is a medical appointment the deals with the occurrence or recurrence of a genetic disorder in a patient or family. It can take place in different settings such as a hospital, university, private practice, public health agencies, and etc. I would choose to work in a hospital. It seems like there is always activity going on and I love the feel of a helping environment. ( I do not like being the patient though)

Anyways, more about that later.  Now lets get to business with this hospital visit…

On Thursday night I felt dizzy as always, but it was worse than normal. I went to do some laundry in the basement and I came back upstairs. Halfway up, I blacked out and supposedly fell down to the bottom of the stairs. (Lucky I didn’t fall down my basement stairs made of concrete and linolium, but my carpeted one to my bedroom. I probably would have broken some bones otherwise.) My boyfriend said that I was unconcious and that the dog was barking non-stop when it happened. He was in the bedroom listening to music on his headphones. Thank god for my dog.

My boyfriend said that he couldn’t wake me up for 3 minutes and when he finally did, my body started shaking nonstop. I passed out 2 more times, one in my house, and one in the car on the way over to the hospital. I woke up in the trauma room with my legs still shaking. They got me to calm down and everything seemed ok. My dizziness was still pretty bad. I got moved to another room where they did a neuro exam on me and said that I should still get an EEG as an outpatient. ( I didn’t get one thursday afternoon like I thought I was going to, it was just a basic exam.) I was told that I could go home but when I went to start walking I couldn’t stand up or keep my balance so I got stuck staying there overnight.

Friday, I got up and stared at the snow all day. It was so pretty because it was floating in midair and not coming down hard. It looked like it was just dancing with the wind. I got my EEG in the afternoon and spent the rest of the day with goop in my hair. Gross. I got moved to another room where I have a view of the parking garage. Lovely… I get to people watch all day as they go back and forth to their cars…. so fun. Oh well, I get what I get… at least I have a window.

Last night they woke me up 3 times to check my blood pressure. It felt worse than waking up to let my dog out 2 or 3 times a night. It’s hard to fall back to sleep in this place. They finally woke me up again at 7:00 am for breakfast…seriously it’s Saturday! I’m running on what I call “an old person’s schedule”…7:00 breakfast, 11:30 lunch, and 5:30 dinner.

I don’t know what my plan here is yet. My neurologist already checked up on me this morning and said that my EEG was normal but it does not rule out 100% if I had a previous seizure. She said with me it was probably unlikely that I had one. At least I got some good news! I’m still in this bed due to my vertigo and lost of balance though. I just wonder when I’m going to get out of here. My day nurse came in and said that my night nurse will be back tonight. I just sat there and groaned. ( Go back to the picture of the outlet..that face the outlet makes, was the exact face I made when I heard about my nurse)

My only visitor yesterday was my boyfriend for only a few hours… I can’t imagine what it is like for those people who have no one.

On the bright side, I just heard that I may have 5 possible visitors today so I’m looking forward to some company.

It’s also my 11th month anniversary with my boyfriend…. one more month and I’ll be shocked…guys don’t usually last this long with me.

Well I will update more later.

Hope everyone has a wonderful weekend…:)

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Monkeying around

January 7, 2010 at 2:06 am (Uncategorized)

Joke of the day….

My only skill is knowing driving directions, but they teach me it’s not going to get me anywhere far in life.

Well this week is going by sooo slowly for some reason…tomorrow I have to go in for an EEG. I’m really nervous. The reason I have to go is because I accidently smacked my head on a door frame from a loss of balance in the dark. This happened a month ago and I didn’t think it was that serious. After I hit my head I felt ok once I got some rest. I ended up passing out in my class 2 days later and had a seizure.  Then the next day, I suffered from amnesia for a few hours. I kept thinking, what’s going to happen tomorrow? I’ve concluded that I had a head concussion since the doctors could find anything wrong in my xrays and CT scans, but I still have to go tomorrow to see if I have any other underlying conditions that I am unaware of. Hopefully it’s nothing. I am now fully recovered from this “head concussion” that seemed to have lasted 2 weeks. If only I hadn’t loss my balance, none of this would have occurred….

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January 4, 2010 at 7:10 pm (Uncategorized)

So… I just looked at the weather report today…. hmm…snow, snow, snow… oh wait we get sun…next Wednesday…wow everybody should go grab a beach towel and their bathing suits and lay out in the snow because that’s the only day to get our much needed vitamin D. Now who’s with me?

There are days that I ask myself why in the world did I leave Texas? I stayed in NY last summer for school and thought it would be a nice change from the blistering heat. Well I was wrong!!! It was freezing and I wore a sweatshirt to school everyday!!  It never even got to 90 degrees…so called “global warming”…more like “ice age”.

Anyhoo, I get to bake tonight with a friend from class. We have a class from 12-2 on Tuesdays (my favorite class of the week) and instead of sitting there and starving, we decided that we are going bring the most nutritional snacks to class…. peppermint bark and chocolate mint cookies. YUM! Hopefully I won’t eat it at all tonight and save some for the classmates. 🙂

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Plastic Bubble

January 4, 2010 at 2:11 am (Uncategorized)

Today turned out to be some day…. the weather was bad and I spent the whole day studying. Now, I’m extremely dizzy and unfocused. I did get to  see the movie Avatar in 3D at an IMAX theater tonight so that was pretty cool…however with my dizziness it was more like a 4D movie.

I can say that the worse part about LVAS is not feeling like you have complete control over your body. I always feel like I’m behind my body, to either side, or in front of it. On days that I feel really unconnected, that’s what gets me in trouble. I could be leaning towards something slightly in my mind, but in reality I’m leaning too far to the point where I hit my head on a door or fall down the stairs for example. Days like that scare me because I have no way of stopping it and I never know what’s going to happen. As everyone always tells me…we should put you in a plastic bubble. Seriously..could someone invent one… and maybe put a nice massage chair in there 😉

Well I only have a few short hours of my break left…. then off to school…I think they should declare snow day every day it snows…that way I’d have the next 4 months off. Maybe I should start a petition….

Here’s my dog Anubis… I tried to give him my school stuff so he can destroy it…instead he just sat there and posed with it. What a bum!

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Energizer Bunny

January 2, 2010 at 1:49 pm (Uncategorized)

Here’s your joke for the day…

Energizer Bunny arrested, charged with battery.

Hmm, maybe I should be an energizer bunny….meaning drinking a lot of energy drinks so I can do something productive around the house. I’m a procrastinator when it comes to housework, but not schoolwork. I just find housework tiring especially since I have a puppy who tends to make my job a little harder. Once I clean everything, it only looks nice for 2 hours. Then my puppy decides to tear up all of his toys and scatter them everywhere, take toilet paper from the bathroom and shred it to pieces all over the living room floor, and not to mention chew holes through the carpet.  Could he be anymore destructive? yes, there are countless of other things he has ruined. However, I can’t help but love him 🙂  He is actually incredibly smart and well trained, but he’s out to get us and he thinks its funny. Oh well, this should prepare me for when I have kids right?

Well today looks like it’s going to be a good day as far as the level of my dizziness. It seems to be to a minimum right now so I feel like I can get things done and stay focused. I’ve learned that in order to reduce some of my dizziness I have to steer away from alcohol, salt, caffeine, and stress. Stress is usually my biggest problem and not only does it cause my dizziness to go to the extreme, it creates other health problems as well. I’m starting back at school again in 2 days which mean my stress will increase significantly. There is nothing worse than being dizzy, sitting in a classroom of 200 people, listening to a monotone lecture for 2 hours and stressing about how it’s possible to read and study for exams when you have 3 papers, a presentation, online homework assignments to do everyweek on top of extra assignments that are given out randomly. I absolutely love to learn, but it makes it hard when everything has to be on a tight schedule. I am on a quarter system at my school so my classes are only 10 weeks long and then I have finals. The problem with it is that I have some brillant teachers who want to teach as much as they can, but sometimes it’s just a little too much for that time slot. I feel like I can’t do as well because I don’t have the time to study for all that extra material.

Oh how I can’t wait for graduation…whenever that’ll be.

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Hello world! Hello 2010!

January 1, 2010 at 6:04 pm (Uncategorized)

Happy New Year!!

This is my first blog ever to write. I never thought I’d mesh in the world of technology…but here I am blogging away.

Today’s a special day just because starting a new year is like a breath of fresh air. It’s snowing outside and it’s absolutely beautiful!

One of my many resolutions for the year is to keep the positive in my life despite all the negative that continues to stand in my way. Most of the negative things that typically occur to me have to do with LVAS. Some days I have bad days and some days I have good ones. I consider myself lucky just because I know I’m not worse off like many other people in the world who deal with terrible diseases. With LVAS, I basically deal with dizziness every day of my life, but it has become more of a second nature to me. There are days where I’ll have attacks ( I’ll explain later) and it can be debilitating to the point where I can’t do anything but lay in bed. It can take place over the course of one day or it can be a  month long. I can recall no more than 10 attacks in my life thus far, but each time it’s a little different.

I’ll start to explain how LVAS has affected my life and about my concerns for my future over the course of the month.

In the mean time, I’m going to go bake some cookies, work on a painting, and relax. There’s nothing like free time to do anything you want before having to start back up at school again. 🙂

Here’s to 2010, a long fun journey

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